world sickle cell day - June 19

Sickle Cell Disease Coalition Calendar  


TRANSFORMING SICKLE CELL CARE IN THE U.S. AND BEYOND: Sickle cell disease (SCD) remains a significant—yet largely neglected—global health crisis, impacting millions of people worldwide. Every year on June 19, countries throughout the world unite to celebrate World Sickle Cell Day. The international awareness day is observed to increase public knowledge of SCD. 

CHANGING THE FACE OF SCD IN KENYA: In Kenya, sickle cell disease (SCD) is a major public health concern and a significant contributor to child and adult morbidity and mortality. The Ministry of Health in Kenya, in partnership with Novartis, Non-communicable Diseases Alliance Kenya (NCDAK) and Academic Model Providing Access to Healthcare (AMPATH), launched the Sickle Cell Disease Afya Dhabiti Project in September 2023 to help reduce the burden of SCD in Kenya and strengthen health systems to improve patients’ access to quality care. The groundbreaking initiative aims to enhance the quality of life for people with SCD in Kenya through comprehensive awareness, education and advocacy in 17 high SCD burden counties. The three-year program will focus on training, research, capacity building of health care workers, affordability and accessibility to treatment.

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facts about Sickle Cell Disease 

  • Sickle Cell Disease (SCD) is the most common hereditary disorder and currently affects over 100,000 Americans, predominantly people of African, Middle Eastern, Grecian, Indian, and Latin American descent. 
  • Sickle Cell disease causes the body to create abnormal hemoglobin and abnormally ‘sickle’ shaped red blood cells that causes pain and numerous health complication. 
  • Because of abnormal hemoglobin, red blood cells to stick together and create a ‘sickle’ shape, which causes pain and health complications. 
  • Although there is no cure for Sickle Cell Disease, blood transfusions (supplied exclusively by volunteer blood donors like you!) are a critical part of treatment.
  • Many times, blood transfusions can help relieve the pain and complications that occur during a sickle cell episode. 

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"Our son's cancer treatment just ended, but unfortunately his bone marrow is a bit slow producing platelets. He's needed consistent platelets every week since April 1st, during radiation. Since his platelets are low, he does have some constant bleeding going on. He's needed blood transfusions about every other week. We can't thank you enough for your donation. "

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